Posts Tagged ‘Commentary’
Caregivers & Health Care: A Complicated Relationship
As a caregiver for my mother, I frequently interact with our health care system. Having received a liver transplant ten years ago via Medicaid and Medicare, my mother has also experienced other health consequences including kidney disease, type 2 diabetes, and chronic heart disease. Last Friday, my mother went in for an angiogram on her liver (to determine flow) while I struggled with a skin infection on my arm. Although my mother and I belong to different health provider networks, navigating the health care system for caregivers and the people they care for provides the basis of a love/hate relationship.
My mother had scheduled the procedure for 12:45 pm on a Friday, with our arrival time at 11:15 am. (Thankfully, I had called my doctor for an appointment about my skin infection the previous week, but was sent to Immediate Care due to a lack of appointments) A notification text the day before had indicated the time moved up to 2:45 pm, but my mother had clarified the time since we were depending on medical transportation. So we were both surprised when that Friday, at 5:30 am, we received a call from the transportation provider asking if we could be ready for a 7:00 am pickup. From that point,
- We arrive at the hospital with nothing in their records about Mom’s appointment. After being bounced through various departments, we learn where we’re supposed to head, and we’re allowed in.
- After arriving at the appropriate department. , we wait for Mom to be prepped. To kill the boredom, I sign up for text notifications about Mom’s procedure. While waiting, I call my primary care physician for follow-up; luckily, I’m able to schedule an appointment in between job search efforts and watching YouTube.
- Once Mom is formally prepared, I grab lunch and sit in the family lounge. My time is spent writing, doing some job searching, and catching up on social media.
- After making my way into the family lounge, I wait for another two hours when I am notified by an attendant that Mom is heading into her procedure. During this time…
- I receive a call from Mom’s transportation provider; after I apologize for the delay, the driver informs me that his manager does not want his drivers out after 5 pm, necessitating a last-ditch effort (Spoiler: hospital staff ensured that we had transportation home), and
- I discover that it was #NationalCaregiversDay on Twitter, and a tweet declared that “Caregivers are the health care system” and that caregivers “rock” at negotiating health care services.
And that’s part of the problem: too many people advocating for caregivers do not understand the totality of negotiating the health care system. (Watch the above video from Last Week Tonight With John Oliver for details). Rather than focus on advocating for systemic changes, these advocates tend to focus on more superficial issues. Many caregivers dealing with the complexities of the health care system on top of their caregiving duties have a greater risk for compassion fatigue and caregiver burnout. There’s a lack of acknowledgment about the burden and toll of caregiving on the individual, substituting self-help platitudes for more adaptive caring strategies and fostering connection and community.
But the greatest challenge in negotiating health care is engaging in self-care as a caregiver. Many caregivers are more likely to sacrifice their own health when caring for an elderly relative, and some caregivers experience health issues as a result. (Mental health issues for caregivers, especially male caregivers, are also critical). Caregivers are rarely reminded that self-care is not an indulgence, but a discipline. Negotiating a complicated system only adds to a caregiver’s stress; working to “game the system” makes it harder for caregivers and their relatives.
Final note: I was fortunate to learn that my skin infection was easily treatable with antibiotics. However, getting to that point involved negotiating a tricky, often contradictory system that lacks empathy for patients and their loved ones. With the recent focus on public health issues around the coronavirus, it would be tempting to take a less even-handed tone about health care. However, caregivers – like many other people – have a complicated relationship with health care because of bureaucracy, costs, and lack of access to services.
And it shouldn’t be – health care is not an indulgence, it’s a right.
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On Thanksgiving and Gratitude in 2018
Every year, writers, pundits, and bloggers post something about the importance of Thanksgiving and gratitude. I’m not immune, especially since I wrote a guest post for last year’s 30 Days of Gratitude. But this past year, a year which put the “dump” into “dumpster fire”, was especially challenging for those (like me) to try to find gratitude.
After all, I’ve recently been working through difficult issues around caregiver burnout (although I’m finding recovery during National Family Caregiver Month). Although I’ve managed to find some freelance gigs and consulting work, they have not been consistent or steady. Finding a balance between freelance searching and caregiving is always a challenge…and embracing change in difficult times is easier said than done.
However, there are three things that I am especially grateful for on this day before Thanksgiving.
- I Have Been Connecting – And Reconnecting – With Friends and Contacts: This year began with finally seeing a musician friend perform live. I’ve reconnected with another over dinner and a shared love of cooking. I have also reconnected reconnecting with professional contacts, leading to work (in some cases) and potential opportunities (some of which have come to pass; others are still in process). Thanks to new contacts, I have been able to post more frequently on this blog and have seen a rise in unique visitors. Although I don’t see my friends as frequently as I would like, I am grateful for the opportunity to connect outside of social media.
- I Have Seen My Writing Career Expand – I’m not just talking about my first public reading or seeing more of my fiction being published; I have also started a Patreon page for my writing and blogging. I was also fortunate enough to have an eight-page comic story published in the Always Punch Nazis story, and chuckled when it received coverage by Breitbart. (That coverage, ironically, drove the project’s Kickstarter numbers upward, so thanks, Breitbart! And no, I won’t link there – there’s a reason Google exists, you know). And I’m especially proud of the C2E2 and Windy City Pulp & Paper panels I moderated earlier this year.
- I Have Made Healthier Decisions – Self-care when being a caregiver is always a challenge…but I’ve made some positive decisions. Taking up home cooking has not only allowed me to eat healthier (and continue my weight loss) but also provide content for my Instagram account. I left my volunteer duties as charity director for a convention because I needed the time, and quite honestly, the working atmosphere was becoming more hostile. Recently, I turned down a full-time job offer because…well, even though the job market is so tight that I was offered a position after two phone calls within the same week, there were plenty of red flags. I thought it better for my sanity – and my career – to consider a healthier, less stressful alternative.
I know what I’ve written sounds trite, and maybe I’m being a little too unrealistic, but there’s one belief that’s kept me going throughout the year. It’s simple, and maybe cliche, but it’s kept me from moving into a dark, cynical place…and why it’s making
Right now, everyone is feeling under siege. For some, it’s part of their experience that is only getting worse in the current political climate; for those like me, it’s an unfamiliar experience. My choice in attitude can be one of corrosive despair or hostility…or it can focus on our common humanity. Although I don’t believe there can ever be “common ground” with the opposition (they’re just out to hurt “the other”, and I don’t think writing a story for Always Punch Nazis helps my case), I believe that setting boundaries, focusing on my own behavior and attitudes, and treating people with a modicum of respect helps make my own experience easier.
We’re all tired. We’re all frustrated. Despite the outcome of the recent election, there’s a further fight ahead of all of us. That fight to recognize the common humanity in all of us – and to change some of the very systems that deny that humanity – still has a way to go.
But I’m grateful to still be here, to still keep moving forward…and that this Thanksgiving, I can acknowledge and appreciate that fact.
Is there anything that you are particularly grateful for this Thanksgiving? Please leave your comments below or join the conversation via our Facebook page.
And as always, thanks for reading…and Happy Thanksgiving!
Documentary: THE SOCIAL DILEMMA and Social Media
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Social media has been the focus of criticism in recent years. Following our review of Social Warming, we’re presenting a recent documentary about the hazards of social media. Although making its premiere on Netflix, The Social Dilemma is now available for viewing on YouTube. Catch the embed below.
(If you see only code, you can find it via direct YouTube link. It’s also a must-watch, especially for social media professionals).
As always, you’re welcome to join the conversation on our Facebook page or contact us via email.
And thanks for reading!
Written by gordondym
September 16, 2021 at 8:14 am
Posted in Commentary, Politics, social media, Video/Film
Tagged with Commentary, documentary, film, social media